Paid Leave for Parents of Seriously Ill Children
According to the commissioner, parents with critically ill children ought to have compensated time off.
According to Dame Rachel de Souza, the Children’s Commissioner for England, parents of children with severe diseases or impairments ought to be able to take paid time off from their jobs.
To alleviate the “immense pressure” and lost wages that families experience when a child gets a crippling ailment, she urged the government to establish a legal right to 12 weeks of paid leave at 90% of regular salary.
Her involvement coincided with the government’s ongoing consultation on how to provide financial support to families and unpaid carers in England, Scotland, and Wales who are caring for sick children.
Parents of Critically Ill Children and Paid Leave
She stated: “Parents should not be forced to choose between being at their seriously ill child’s bedside and keeping their job.”
Parents have told Dame Rachel about the “impossible choices” they have faced when “splitting time between caring for their seriously ill and disabled children and trying to hold down a job.”
Additionally, she has supported the idea that “families whose children have complex or fluctuating needs to remain in employment while providing the care their children need” should benefit from a “right to return to work” after prolonged leave.
Proposed Paid Carer’s Leave and Unpaid Leave
Dame Rachel advocated for the introduction of a type of paid carer’s leave as well as an increase in unpaid leave from five to ten days per year.
It follows a campaign by the parents of Hugh Menai-Davis, who passed away in 2021 at the age of six from cancer.
His parents, Frances and Ceri Menai-Davis, have pushed for an amendment to the legislation requiring companies to provide parents whose kid suffers from a serious physical or mental condition with a three-month salary guarantee.
In June, Ceri Menai-Davis stated, “There is no specific right that permits the parents to be by the child’s bedside in the hospital.”
You will only be by your child’s bedside if you are a parent.
UK Government Consultation on Family Support
Monday is the deadline for a consultation on changes to the assistance offered to families and carers.
“Serious childhood illness is a heartbreaking situation for families,” stated Kate Dearden, minister for the future of employment.
The moving tales we have heard have deeply touched me, and we will act swiftly to explore ways to improve job rights and help for families dealing with severe childhood illness.
Clarification
Clarification 2 September: Dame Rachel de Souza was initially referred to as the children’s commissioner, but it wasn’t made clear that she was the commissioner for England. To make that apparent, the article was revised.

